Today's visit was okay. Terry noticed that Lydia was not holding her head up on the ball as well as she did last week. She aslo noticed some "twitching" like the trembling I described yesterday. She gave us some things to do at home to work with her:
- facilitate play with her hands in her field of vision. She showed me how to put Lydia's hand on a toy (my nose, etc.) while she is looking at it...she said it will encourage hand-eye coordination.
-put pressure on her chest while pulling her up to encourage her to tuck her chin and hold her head from lagging back
-put pressure on her back when she is on her tummy (preferrably on the ball) to encourage her to hold up her head with her hands under her.
Big thanks to my cousin Dottie for giving us an exercise ball to use with Lydia!!
Dr. Hollman suggested that I keep a notebook of all the spasms that Lydia has so that we'll know exactly how severe it is and we'll know when it stops (after the medicine). I've decided to just keep a detailed log of everything....feedings, naps, odd behavior, etc. I think it will help me to be more precise when I talk to the dr's...I am not very good at estimating or remembering things.
No spasms so far today!! That's a good thing...though I have noticed the twitching more.
The medication is expected to arrive tomorrow. Pray for all of us when dealing with this.
Thank you again for all of the encouraging sentiments I've heard in the last week. Please help me to stay positive and prayerful. I do not need sadness or sympathy. One day at a time with God by our sides is the key.
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