We just got back from a dr's trip this morning. I brougth Lydia to see Dr. Wood because she started to develop a little rosey cheek rash that I was afraid might be fifth disease. Thank God it was not. He said it is probably just chapped cheeks, and we should just treat it with Lubriderm. We then went for her blood test at the Lake to check her thyroid levels. She's had her thyroid medicine & reflux medicine, just like every day. She will soon get her shot (just like every day) and we have a PT appt with Susan this afternoon. I just cried the whole way home and am having trouble stopping the tears now. There is just so much for my poor little baby to endure...how dare I feel sorry for myself for all my "things to do" or my lack of sleep lately since she hasn't been sleeping well. The things that I am dealing with are nothing compared to what she has to take...and she's just a baby. I watched her cry through the blood test (oh...and she also had one yesterday with the home health nurse) and I could just see her saying, "Enough already!" She is just a little baby...not even five months old and has had so much to deal with! She has a 5-page medical history already. But, I know that God wouldn't give her any more than she can handle either. He must have a ton of confidence in her! That sort of helps me to accept it better...and I've seen how tough she can be.
I realized today that I haven't updated her weight lately...12 lbs. 6 oz. She gets weighed everytime the home health nurses come, so I forget to post it. I pray that it continues to go up...she has still been crying most times that she eats. She has also been refusing to eat sometimes. She'll take about an ounce and then throw her head to the side when I try to give her more. Usually after waiting a couple of minutes, I can get her to take some more. Once I get the bottle into her mouth, she'll usually start to suck...but not always. She also gags a lot while trying to eat. Please continue to pray for comfortable feedings for her so that she can maintain her weight gain and feel some relief from whatever pain is causing her to hate to eat.
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3 comments:
My heart is with you honey - hang in there.
Love
Mom
Mandy hey it's Jen-your friend. I just wanted to tell you to hang in their. You are such a great great mother. You are such an INSPIRATION to me. You have had so many trials and challenges being a mother and I don't know anyone who could do a better job than you. With all of the prayers that have been said and all of the prayers that everyone is still saying that God knows what he is doing but I also know that it is so hard to see your child hurt. She is a champ!!! So are you!!! I want you to know that if you ever need a shoulder to cry on or a shoulder to laugh on I will always be here for you. Hang in their. I love Yall !! Jennie
Jen-my-friend...I haven't said that in so long! I am so thankful that God has invited us to be close again, and that Lydia is blessed to have such a good godmother. Thank you for your shoulder...God knows I've cried and laughed on it before...probably more laughs than tears...you just have that effect on me...THANK YOU! Love you Nannie J!
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