First Shot Day

The Home Health nurse came at about 2:00 today to give Lydia her first shot. She was a trooper!! She barely cried much at all! That made it a lot easier on her momma...though Audrey was still a little spooked. She skipped her nap because she wanted to watch everything that the nurse was doing. We first did some paperwork, then she took Lydia's vitals...blood pressure, temp, listened to her heart, weight (11 lbs. 12.5 oz.!), height, head circumference...then she began showing me how to set up to give the medicine. Audrey was enthralled the entire time until just before the nurse gave shot...she jumped up and backed up quickly across the room. We talked about it later...I think she just couldn't watch Lydia hurt...that's tough on all of us...good thing Lydia is so tough!! The nurse asked if I was nervous about learning to do it myself...I told her that I was sitting there thinking about who I could ask to do it for me. :) It didn't look like something hard to do...just hard to know that you are inflicting pain on your child. I relate it to the time that Audrey got her hand stuck in the treadmill and had 2nd degree burns. We had to clean it and redress it twice a day, and I think I dreaded it more than she did.

Anyway...possible good news about the shot...Dr. Hollman's nurse called today...the EEG was normal again. (Lydia sure is good at passing all their tests...EEG's, MRI's, CT scans, EKG's, etc, etc...they've all pretty much been normal.) Dr. Hollman wants us to keep our appt with her for the 10th and we'll discuss whether or not we'll continue the shots past that date.

You should see this outrageously expensive medicine...5 mL...that's 1 teaspoon!...Blue Cross settled on $24,000!!! Granny asked if it looked like liquid gold. :) For that price, it should have diamonds floating in it.

Since she should get the shot at near the same time everyday, we decided on 11:00. We'll do that each day until Dr. Hollman tells us otherwise.

Next Week's Schedule:
ACTHAR shot each day- 11:00
Monday- Lydia-Dr. Wood 9:30 (recheck for ears and 4-month check-up, though she will not get her 4 month shots since she is getting the ACTHAR right now.)
Tuesday- Lydia- Dr. Lutfallah- 12:30 (endocrinologist)
Wednesday- Audrey- Dr. Petite (check-up)
Thursday- Lydia- Dr. Hollman
Friday- Elise - speech therapy

Sweet story:
Martin has been playing around lately with a little guitar that Camryn gave to Audrey. Last night he was playing it a little while I was holding Lydia next to him. We swear that she started to sing while he was playing...it was so sweet!! Today, I was telling Audrey about it, so she started to play to Lydia...making up songs to sing to her...Lydia was loving it! It was so cute! Audrey said she was singing "God songs." "God loves you...anywhere you go in the gospel....the gospel reading..." She was so serious and has such a pretty voice...it brought peace in my heart ( and a little needed laughter). I told her that Maw D and all our other angels were watching and saying, "That's so beautiful!" I think I hurt her feelings tonight because I was laughing out loud...I couldn't help it...at the song she was making up with the guitar, "When I go to bed, I sing a lullaby to myself..." If you could hear how serious she is when she's singing, you'd see why it's so funny. :)

No spasms today...though I have a correction about yesterday. She did have one early yesterday morning...the days seem to run together sometimes, and I didn't remember that she had one yesterday until I read it in my notebook. That is really helping me to keep things straight.

My dad shared with me today that reading this blog has strengthened his faith. How wonderful and miraculous our God is! He has a purpose in all that happens to us...much greater than anything we could ever imagine. I haven't told my dad this...but, I remembered later...a prayer that I had forgotten that I prayed long ago...I prayed for my dad to become closer to God and if He so chose, to use me as a vessel in whatever way He saw fit. The awesome power of our loving God...it never ceases to amaze me!