PLEASE Pray...

...for help with feeding difficulties. It has gotten even worse for Lydia today. I am really confused by it, though her doctors and I should probably be used to being confused by her. She doesn't appear to be in much pain from eating...she is just refusing it...she turns her head from side to side away from the bottle when I try to feed it to her. If I try to hold her head still to eat, that's when she starts to cry. If I actually get it into her mouth, she usually starts to gag. She seems to be pretty content, otherwise...that's what really perplexes me. I know that her congestion is still miserably bad, so it could possibly have gone to ears to cause an infection...or maybe her throat is bothering her...but, I figure that if it were any of those things, she would be crying from hunger because her stomach is just about empty. She usually takes in about 24 oz in a day. Today, she has taken 6 oz. total. I can't get her to eat more than an ounce and a half at a time. I've even resorted to putting formula in her mouth with a medicine dropper and then giving her the pacifier to suck it down...no luck with that either. I weighed her this morning, and she has lost 4 oz. I'm really starting to get worried about this. The most frustrating part is that I will call the doctor in the morning, but I am almost positive that they will not know what to tell me...Lydia is just so confusing. Hopefully, if we get a diagnosis soon, that will help to answer some questions...but that doesn't help with the here and now. I will also call the endocrinologist in the morning to find out what her thyroid levels were last week...maybe that will shed a little light...we'll see. Also, Elise has her urine test tomorrow morning for the MPS disorder...keep her in your thoughts this week too please. Then she has speech therapy at LSU....Lydia has OT at home at 1:00...then Audrey has an ENT check-up at 3:45....busy day!! I will try to remember to b..r..e..a..t...h..e and trust in the Lord...I know He will be there to carry us all.