We saw Dr Wood this morning for our surgery follow-up and for Elise's ear infection follow-up. Both went well...ears are fine...incision is fine. Dr Wood immediately said how good it looked as soon as he removed the bandage...good thing...I was a little surprised by it. I'm not sure what I was expecting, but it made me feel bad for Lydia all over again when I saw it. It looks a lot longer and more traumatic than what I expected...I knew it was about 1 1/2 inches, but I'm not a very good estimator...so it looked really long to me. I guess, like Martin said, her leg is so short that 1 1/2 inches is just about her whole thigh...so it is like looking at about 8-10 inches of our thigh. Anyway, I was glad that Dr Wood thought it looked good. He told us to treat it with neosporin for a few days and keep a butterfly bandage on it...Audrey said, "or we could put a heart bandage.." Such innocence! :) We've had another good day today...Lydia taking at least 3 oz at every feeding...spoon feeding pretty well too. I talked to Dr Wood this morning about our possibility of a feeding tube. He said, "Well we knew from the beginning that that would probably be inevitable." I was a little surprised at that...I never knew that it would be inevitable...but it is looking that way now anyway. According to her chart at Dr Wood's office, she gained 4 oz in the past 24 days...considering that Dr Alberty wants her to gain 1/2 oz per day, she is considerably below the mark. He agreed that we don't need to rush into it right now since she is eating well...but, if and when she has another dip, we should go ahead and do it. A part of me just feels like all of her dips have been explainable...reflux, weaning from ACTH, recovering from procedure...but, I guess if every problem that she has causes her appetite to decrease...and we expect multiple problems, it doesn't matter if there is a reason for the lack of appetite...we still need her to eat. I think they are most concerned with these first 2 years or so of her life...to ensure maximum brain growth and development. He said that we can watch for the next 2-3 weeks to see how she does to know for sure that she will continue to eat well. I think that is a good plan.
Have a great weekend!
Friday, March 28, 2008
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