The Morning Report

Lydia had a relatively good night last night...woke up for one feeding....2 1/2 oz. I was starting to get hopeful about an increase in her intake, but she's had two feedings so far this morning...both just one ounce each.

Dr. Ramey came in this morning...he was also hopeful that her feeding will turn around before Saturday, so that we don't have to do the feeding tube...but, we'll do what's best for her. He talked to me about the fact that babies don't normally get urinary tract infections. So, that makes them wonder if there may be some type of abnormality with her urinary tract. It is possible that some type of bacteria just got in there to cause the infection...especially with little girls, since their outside is closer to the inside for girls than boys. But, it is worth looking into to make sure that her kidneys, urether, and all the other parts are formed properly...especially considering Lydia's medical history. There are two procedures that they do to determine this: (1)an ultrasound of the kidneys, which is obviously not invasive at all...they will do that while she is here in the hospital....he put the orders in this morning. This is to be sure that she has 2 kidneys, both are the right size and shape and have no other abnormalities. (2) The other test they do (didn't catch the long name he gave for it) is to shoot a dye into her bladder with a catheder...then take multiple x-rays of all parts of the urinary tract to be sure that all of that is normal. He said that they want to wait to do that for a couple of weeks....after the urinary tract infection is definitely gone.

I called Dr Superneau to find out about Elise's test results, but he did not have the report yet. He was going to try to track it down and call me back today....scratch that...they just called. One test came back normal. Hip, hip, hooray!! One test is still pending...they'll call back in the next couple of days.

I also called Atlanta this morning...we have an appt for March 18 and 19: Consultation- on the 18th; Muscle biopsy - on the 19th. Martin, Lydia and I plan to fly out on the 17th, and fly back on the 20th.