Monday, February 25, 2008

Still waiting

I left another message at the clinic in Atlanta...I also called Phylis (Dr Hollman's nurse) about it. She said that she would take care of getting us set up with them. I told her that we would take the earliest appointment that is available. She was waiting to get Lydia's chart back from Dr Wood this afternoon, and then she was going to call them. Hopefully, we'll hear something soon.

Lydia's 6- month check-up:
13 lbs. 8.5 oz. - 10th percentile (same as it has been)
23 3/4 in. - 3rd percentile (less than it has been)
Head circumference: less than 3rd percentile (same as Dr Hollman's chart showed)
I told Dr Wood that Lydia's appetite has decreased lately. I am having trouble getting her to finish her 4 oz bottles. I remember that Dr Hollman said that the ACTH shots would increase her appetite...maybe since we are weaning from them, her appetite is decreasing...not sure. Hopefully, it doesn't affect her growth.

Elise:
She has been talking so much lately!! She had a minor ear infection last week, and we started drops on Friday. Her mood has definitely turned around....much less whining and crying...many more words...putting together two and even three word combinations. Yeah!!

Audrey:
I'm noticing that Audrey has a nose-dive in behavior after we've been somewhere that I'm talking a lot to someone about Lydia and Elise's conditions, therapy, outcomes, etc. I think she may be feeling a little left out. I'll have to watch what I say in front of her. I want her to feel like a very important part of our family too...I've lately tried to make it a point to talk about her "stuff" too...her birthday, soccer, and all her accomplishments (she has so many:). I need to pay close attention to this...she deserves lots of attention too!

Thank you for your continued prayers. As always, we truly appreciate it!!

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