We had a great time swimming at Grandma and Paw-Paw's house yesterday...a real treat to kick off the summer! Audrey started swimming lessons this morning...I realized yesterday at Grandma's pool that I have really overdone the "water safety" talk. All Audrey talked about was drowning, and she was afraid to do almost everything because she thought she might drown. She did loosen up after just a little while, but she told me today that she was scared at swimming lessons. I like her to have a little fear or respect of the water, but I don't want her to be petrified. I think that she will do fine after she finishes her swimming lessons...she'll go every day for the next 2 weeks. We have a pretty busy week.... along with her swimming lessons, Audrey has gymnastics on Monday evenings. Elise has BR Speech and Hearing Tues and Thurs...plus Tues is my parent conference with her teacher and Thurs is her "end of the year" party...although she will have a summer session too. Lydia has OT with Teresa tomorrow, a check-up with Dr Wood on Wed, and PT with Susan on Thursday...then we have an Early Steps meeting on Wed afternoon, and speech with Suzanne on Friday.
Martin's summer began today...which only means that a different phase of his job begins...coaches don't get much of a summer off. He starts his basketball camp this week...and his summer league basketball team and weight-lifting for the team, which lasts all summer. But, we are all thankful for the time he gets to spend with us in the mornings. I will also be working 9 days of the summer for different technology trainings for WBR...Martin will keep the girls for most of that time.
As I'm sure many of you realize, the time is drawing near for us to get news from Lydia's biopsy. The expected time frame was 8-12 weeks, and we are well over the 8-week mark. It is on my mind now more than I realize, I think, now that it is getting so close. I actually went to the Medical Neurogenetics website last week to look at some of the different mitochondrial disorders...I don't know why...maybe to prepare myself? It's not like I could make a diagnosis myself from looking at all of the characteristics of each...the neurogeneticist himself couldn't do that without taking the biopsy! I realized I was really wasting my time. When we actually get a name, then I'll do lots of research to help to understand it and to gather questions to ask the doctors. I'll try to update as soon as that information is made available to us.
Lydia is still doing great! Her tummy time is so great these days! She's been tolerating time in the pink chair from Paw-Paw...not sitting up so great in it, but not crying...that's improvement! Her feeding is super! She is starting to interact with toys more...it is so exciting to see her look at a toy and purposefully reach for it. She's been fun...and such an easy baby! She hardly makes a peep sometimes! I guess God is giving us (and her) a break....she cried so much for the first few months of her life. It is wonderful for all of us to see her happy and content for most of her day.
Thanks for your continued prayers.
Monday, May 26, 2008
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