Just when I thought (or hoped might be a better word) that Lydia had stopped having the infantile spasms, she had two more tonight. A little after 7:00 I was changing her on the changing table in the bathroom while Martin was getting bath water ready for the big girls to take a bath. When I picked her up, I felt the trembling motion and knew right away that it was the beginning of a spasm. I put her down and told Martin to watch with me. After the first few times, he remembered that Dr Superneau had told us to try to video tape it so that Dr Hollman could see exactly what it looked like. By the time he got back with the camera, he was able to video about 3 trembles. She did it a total of 9-10 times. I was trying to watch the clock to determine how long it lasted and how much time was between each one, but my brain was just frozen for some reason. I was looking at the clock and could not remember what time it was since the last time I glanced at it. I was so intent on looking at her. I was also trying to count between each one and was having a hard time doing that too. It seemed as if it was 10 minutes total, but I know that can't be right because it was about 20-45 seconds between each one (or so I think).
Then, at about 11:00 tonight, I changed her diaper and she began another episode on the changing table. Martin came with the video camera again, but she stopped after about 2 times. So, I brought her back to the living room where I was feeding her...then, she did it 8 more times while I was holding her on the couch.
I am no longer doubtful that she'll need the injection treatment. We'll wait to hear tomorrow if she'll do the EEG. I'll try to update tomorrow as soon as I have new information.
2 comments:
Mandy - we had no idea you were going through all this. What a tremendous time of faith for all of you. I read through your blogs and wept as I saw your faith and acceptance of God's hand and His purposes for your trials. I've seen you with your children and your sensible tenderness toward them is something I have tried to imitate with my own. I do know God has a plan for you, as you do. You have expressed this in some of your blogs already, but here is one of the most encouraging Bible verses I have relied on in difficult times: Romans 8:28 - And we know that all things work together for good to them that love God, to them who are the called according to His purpose.
If it's in God's Word it must be true! We don't have to wonder...
If you don't mind, I'm gonna keep up with your website & post your specific prayer requests to our church prayer list along with keeping Lydia on the regular prayer list.
I hope y'all will be able to make it to our house this Sunday. Can't wait to see those girls. My girls are looking forward to it too!
Love, LAURA
Laura-
Thank you so much! Yes, please continue to pray for Lydia...as many prayer lists as possible! :) I am touched by your words...I too admire what I see with you and your children.
We are excited to see you all this weekend. We haven't told the girls yet...we may have to tie Audrey down for the next few days if we tell her too soon...she loves your girls!!
See you soon!
Mandy
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