You won't believe this...The BR Clinic called today...the blood taken for one of the amino acid tests could not be used for the test when it reached the lab. It was supposed to be frozen, but it was thawed when they got it, so it has to be redone. I have calmed down a little now...but, I was so angry when I got that call this afternoon. The lady on the phone from the clinic assured me that they did everything they were supposed to do...somewhere between the clinic and the lab where it was to be tested---there was a mistake. Bottom line: somebody screwed up, and now Lydia has to pay for it. We'll probably go back tomorrow to do it...please pray hard that it won't be difficult. The problem has been that the test calls for no tourniquet...well Lydia's blood pressure is not strong enough for the blood to flow freely into the needle without the tourniquet. Not to mention that her veins are so tiny that they are hard for the lab techs to find. It took four sticks last time...and with each stick they had to dig around in her arm several times to actually get into the vein. She went through patterns of screams and exhausted wimpers...I'm crying now just thinking about her having to do it again. Please ask God to be with her for the test and that the techs have no problem getting the blood needed...and that it is taken care of the way it should be afterwards so that we don't have to repeat it again.
Lydia has still been eating well...she stills cries several times while she eats. It doesn't look like the same fearful painful reflux that we used to see, but I'm not sure if it may be a mild version of that. I hope not. I've been really hopeful about how well her feedings have gone lately. It could also be a little gas in her tummy...she has been having a little trouble burping lately. We'll see...I'll continue to watch her to see what it is. I think her congestion is finally on the upswing. She still sounds mildly congested, but it is not near as bad as it was.
Thank you for your prayers, and please continue to remember her in them.
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